YourStory.Health |
YourStory.Health is a research study to understand stories or experiences of health from stakeholders to inform human-centered policies and systems of health. Individuals can share their health stories in audio, video, or text form. By analyzing experiences we seek to improve understanding among policy makers and contribute to ongoing research and the development of better approaches to achieving improved population health.
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Patient-Caregiver Portal System |
With colleagues from Fox Chase Cancer Center, we developed Patient-Caregiver Portal System as part of a research project to systematically involve caregivers in healthcare settings while recognizing patient autonomy. This system (1) allows a patient to identify their primary caregiver and their communication preferences with that caregiver in the healthcare setting; (2) connects the caregiver to indicate their needs; and (3) informs the healthcare team of patient and caregiver responses to aid in integrating the caregiver within the care system. See publication list for more information.
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