CARING WELL LAB
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​Featured CAre Presentations and Manuscripts 

Presentations:
"Care and Career: Health Systems to Employers" for National Coalition for Cancer Survivorship
Manuscripts:
Patient-caregiver portal system in palliative oncology: Assessment of usability and perceived benefit

​The psychometric properties of a caregiving-related strain scale in oncology

Palliative care clinicians’ perspectives of an integrated caregiver patient-portal system in oncology
Developing an integrated caregiver portal-system
Racial and ethnic variations in cancer caregiving-related physical, emotional and financial strain during COVID-19
Caregiver health by context: Moderating effects of psychological health and health behaviors 
Toward engaging caregivers: Inclusion in care and receipt of information and training among caregivers for cancer patients who have been hospitalized
Cancer caregiving while employed: Caregiving roles, employment adjustments, employer assistance, and preferences for support 
Care and treatment decisions in cancer: The role of the family caregiver
Reducing informal caregiver burden in cancer: Evidence-based programs in practice
Work impact and emotional stress among informal caregivers for older adults
Medical communication-related informational need and resource preferences among family caregivers for head and neck cancer patients
Caregiver psychological health and hospitalization characteristics of older adult care recipients: an integrative review of U.S. studies 
Caregiving choice and emotional stress among cancer caregivers
Being a cancer caregiver for an older, active, and able woman
Cancer caregivers’ information needs and resource preferences
Psychological functioning of caregivers for head and neck cancer patients

​See PubMed or Google Scholar for full publication lists.  ​

​Featured Books and chapters

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Easy was hard enough: A family experience of neurodegenerative dementia. Pennsylvania: Offset Paperback  and electronically published on University of Pennsylvania Memory Disorders Clinic website (2003). ​
Kent, E., Longacre, M.L., Wen-Ying, & C., & Mollica, M. (2019). Who are informal caregivers (Chapter 1). 

​Buzaglo, J.S., Zaleta, A.K., Longacre, M.L., & Golant, M. (2019). Delivery of support to caregivers in the community: Cancer Support Community mission, integration of research, and service dissemination (Chapter 15).  

featured Reports (contributor)

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Hunt, G., Longacre, M.L., Kent, E., Weber-Raley, L. (2016). Cancer caregiving in the U.S.: an intense, episodic, and challenging care experience. National Alliance for Caregiving Report in collaboration with Cancer Support Community and National Cancer Institute. 
The National Alliance for Caregiving (NAC) in partnership with Caring Across Generations (2019) report, Burning the Candle at Both Ends: Sandwich Generation Caregiving in the U.S. Academic advisory committee member, which included reviewing findings and providing commentary on the report (see p. 26). 
  • About
  • Team
  • Podcast
  • Our Work
    • Presentation Topics
    • Publications